Showing posts with label Cancer. Show all posts
Showing posts with label Cancer. Show all posts

Tuesday, July 25, 2023

Why can't life be EZ?

Because it is not. Today I learned that a great man that I worked with in the Air Force (Colonel Ed Maher) is in the hospital for surgery for a brain tumor. This is a rather sudden diagnosis. His daughter, who we only knew as a newborn, posted the news to FB, tagging her father so his FB friends would see. He has a Glioma Tumor. I pray for him, for strength, for comfort, and for healing. Ed was wonderful to work with and for. He is smart and wise and very human. He is educated about as far as a person can be today, with at least one PhD, and yet he was never arrogant. He is universally respected. He has a loving wife and family and many friends. Ed, be strong.

Tuesday, May 16, 2023

Will this be the EZ part?

Post-COVID, the work begins. Not the journey--that's been underway for some time, now.

My official diagnosis is, "locally advanced metastatic malignant melanoma" of my right ear lobe. I was treated with a wide local excision at the end of November, 2022. The post-surgery pathology did not show any spread to the sentinal lymph nodes in my neck (which were removed with the excision) but did show residual malignant melanoma in the ear tissue after the surgery. I have not received an adequate explanation as to why I was not offered additional treatment after the surgery and incomplete removal of the melanoma in November. I have now been staged as "IIIB."

I had my first immunotherapy infusion yesterday. The immunology oncologist laid out the following plan. Two cycles of infusion with combined ipilimumab (Yervoy) and nivolumab (Opdivo) three weeks apart. One week after the second infusion, I am to have another PET scan to reevaluate and to determine the response to treatments, and if favorable based on scan results, a surgical resection followed by nivolumab every four weeks for one year. The doctor says the intent of this treatment is '"curative," which sounds good to me. They have also sent tissue samples to Caris for NGS (genetic) testing.

The infusion process seemed relatively benign, took about an hour and a half, but I was comfortable in a medical recliner throughout. They even brought me a sandwich for lunch. My son, Benjamin, accompanied me to the appointment with the immunologist and sat with me throughout the infusion, then drove me home. Glenda (and Dak, our small dog) stayed with Ben's family at his home throughout the day. The love and support I'm getting from family (and from friends, too) is overwhelming and humbling.

I'm 24 hours post-infusion now, and have no significant side effects noted. I slept very well overnight.

Saturday, April 1, 2023

And it's back...

The melanoma in my right ear lobe is back. I noted a small, irritated lesion in early February. I called the triage nurse at MD Anderson. She conferred with medical staff and told me to see my dermatologist. It took a couple weeks to get an appointment with the dermatologist. By then, there were a number of small lesions on and around my right ear lobe. She said it didn't look like a cancer and prescribed a 10-day course of anti-viral and antibiotic medicines and a steroid cream for the ear. During that time it got continually worse. At first follow up with her, mid-March, she took a biopsy.

I got the results on Thursday, March 30, 2023. Positive for melanoma. By now, the entire ear is inflamed and there are at least 8 lesions on the external ear, plus I have a swollen, sore, red spot on my neck just below the ear. I have an appointment Monday, April 3 at MD Anderson for ultrasonic scan of the head and neck and evaluation by the clilnician. Ironically, this appointment was made in December, as a routine follow up to the surgery which removed melanoma tissue from my ear and three lymph glands in my neck after my October 28, 2022 melanoma diagnosis.

This is my fifth positive cancer diagnosis to date.

Thursday, April 6, 2023 I will go back to MD Anderson, this time for a repeat PSA test and CT scan to see how the possible reaccurence of prostate cancer is faring.

Oh, but the broken rib has apparently healed well -- no pain or problems in that area.

Stay tuned.

Wednesday, March 8, 2023

The saga continues, and it hasn't gotten any EZer.

Since my last post, I have had surgery and a variety of scans (PET with contrast dye, echo-scan of neck soft tissue, PSMA with contrast) and surgery. The surgery was to remove the lesion that proved to be melanoma in my R. ear lobe. The PET scan and echo-scans were prepertory to that. With part of the ear lobe, the surgeon also took three lymph nodes from my neck on the R side for biopsy. After surgery and post-surgery pathology, they reported 'clear margins' on the ear lobe and negative for melanoma in the lymph nodes. That was done by Dr. Shellenberger at MD Anderson/Banner in late November of 2022. It is now March 8, 2023, and lesions (multiple) have appeared on my R ear lobe. They itch, and like the earlier granuloma, have a tendency to form blood blisters, pop untouched, and bleed profusely. I spoke to the triage nurse and MD Anderson and sent her iPhone photos of the ear lobe. She consulted with Dr. Shellenberger. He said I should see my dermatologist. So I did. I saw Ms. Mack on March 6, 2023. She consulted with another provider, then told me that it did not appear to be cancerous but they were unsure of what it might be. She prescribed Halcinonide cream (topical) and both an antiviral (Valacyclovir) and an antibiotic (Doxycycline), all three to be used for a 10-day course and then reexamine.

The earlier-mentioned PSMA scan was a result of my PSA test showing a positive result on the routine annual re-check on December 13, 2022. The results were low, only 0.03, but it has been non-detect for seven years, and should have stayed that way. I was referred to a different clinic at MD Anderson where I say provider Michael Snyder. He repeated the PSA with the same results then ordered the PSMA scan. The results of the scan were inconclusive -- no sign or active prostate cancer was found, but two spots that might be of concern for other malignancies were noted, and I've been scheduled to repeat the PSMA in April. I have to be sedated for the PET scan and/or the PSMA. They aren't as bad as an MRI for my claustrophobia, but more than I can do without some sedation.

Meanwhile, On February, 24, I fell on the sidewalk and broke a rib rib. Was seen at Dignity Health ER, Ellsworth/Elliot. CT and blood work. Clean break, rib #7 (4th rib, R side), 6mm displacement. Prescribed pain killers (hydrocodone/Tylenol and Ibuprofen) x 5 days. Dr. says will heal, but will hurt. 1-3 months normal for healing. Also on CT, report of gallstones, 'tiny' hiatal hernia, and atrophied pancreas. I discussed those findings with Dr. Klein, my PCP, and he was not concerned. At 11 days after the break, the rib still is excruciatingly painful under the 'wrong' circumstances, such as a sneeze.

My friend in Texas, who has the melanoma first found due to the pylogenic granuloma is having a very hard time. Her melanoma spread from a single spot on her leg to an outbreak of cancerous lesions 10 inches in diameter in a matter of weeks. She is being treated by radiation and chemotherapy, and is unable to walk or stand at this time, so can't work. And she's a single mother. Her melanoma was first diagnosed on October 28, 2022, the same day I was first diagnosed with the melanoma on my ear lobe.

Wednesday, November 9, 2022

More of EZ’s Saga

At my first appointment at MD Anderson Cancer Center in Mesa. My extraordinary run of luck seems to be continuing as I've been directed to exam room #13 to await the doctor.

This morning at MD Anderson went much as I expected. It took about an hour to get 'registered' as a new patient, complete a lengthy medical history, and for them to verify my Medicare and Tricare for payment for services. Proving that my lucky streak (except for the lottery) continues, I was escorted to exam room #13. Was seen by the doctor in just a few minutes. He reviewed my medical history with me in detail, examined the spot on my ear, and went over the information forwarded from my dermatologist who removed the original growth. He then went over the plan of confirmatory diagnosis with me. They will obtain the biopsy slides from the lab that did the original to examine in their own pathology lab. On 11/17 I will have an EKG, lab work collected, ultrasound of my neck and head soft tissue, and then see the doc on 11/21 for a pre-op visit. Assuming all goes well to that point, I then go off Eliquis and NSAIDs for a week and on 11/29 be at MD Anderson before 7:00 a.m. (nothing by mouth after midnight) to have neck/head lymphatic gland mapping (a three-hour non-invasive process), followed at 11:30 with surgery to remove additional tissue from the ear lobe and the sentinel lymph gland (one or more glands) for biopsy. This is supposed to be out-patient surgery, local anesthesia only, so I should be home by 3 or so in the afternoon.

If the removed ear tissue shows clear margins and the lymph glands are negative for melanoma, I will only need routine follow-up afterward. If not, we'll go to the next stage to discuss immunotherapy, chemotherapy, radiotherapy, or some combination of the three.

I will need someone to stay with Glenda on the 29th, as I have to be there early and stay most of the day (at least) and I'm not comfortable leaving her alone that long. Writing this up in detail has been good for me just to make sure I know and understand all this activity.

Tuesday, November 8, 2022

The Continuing Saga of Things That Ain't EZ

I learned today that my former massage therapist, of San Antonio, Texas, has just been diagnosed with malignant melanoma of the skin from the exact same type of lesion that I had -- a pyogenic granuloma. Mine on the ear, hers on her leg. This seems especially weird that another person that I know quite well would be found to have the same challenge as I at the same time as I when the doctors tell us that "less then 1/2 of 1%" of the biopsied pyogenic granulomae are positive for melanoma. Just seems strange. She was my (very excellent) massage therapist for nearly 10 years prior to our move to Arizona, and provided massage services to Glenda, as well. She is a very nice person and I wish her all the best in her battle with this cancer. I start my post-diagnosis journey tomorrow morning at 8:00 a.m. at M.D. Anderson Cancer Center in Mesa, Arizona. One thing that seems somewhat encouraging: As I studied up on this disease from documents of the National Institutes of Health, my doctor's name was on a number of those peer-reviewed published articles.

Friday, October 28, 2022

Aging isn't EZ, is it?

Today, I received my fourth positive cancer diagnsis--a malignant melanoma. This based on a biopsy collected upon surgical removal of a small skin lesion from the lobe of my right ear that was thought to likely be a benign Plyogenic Granuloma. Literature I've found from a quick internet search tells me that Pyogenic Granulomas are found to actually be malignant melanoma less than 1/2 of 1 percent of the time. Lucky me. Earlier cancer bouts in my life include cancer of the prostate in 2015, for which I had a high-tech robotic radical prostatectomy performed. And twice, I've had small squamous-cell carcinomas of the skin found and removed--one on my upper back in 2012 and another on the back of my right hand in 2021. This malignant melanoma is a different animal. The removal of the granuloma and the collection of the biopsy was done by a PA that cared for one of my earlier skin carcinomas and also does my routine annual head-to-toe skin checks. This particular lesion wasn't found in one of those checks--it just popped up on my ear a few weeks ago. Her clinic has referred me to Banner Health Oncology for further treatment and diagnosis. She explained to me that they would likely start with additional minor surgery on the ear looking to ensure 'clear margins' around the visible melanoma site, and would probably also want to do further diagnostic tests including blood work and a neck-lymph-node biopsy. If that is positive, it will likely lead to further treatment by radiation or chemotherapy. Right now, I just feel tired.

Friday, December 30, 2016

Good nursing care is not EZ to give.

Someone in the Prostate Cancer support group shared what he called his 'most embarrassing prostate cancer moment' where dignity was out of the question and asked if anyone else wished to share. This was my response from the day of my surgery, just over a year ago:

I feel like my worst moment goes beyond embarrassing--I'd just call it out and out humiliation. And it showed to me just how much nurses deserve to be called angels or even more. It was the evening after my DaVinci RP. I was in a hospital bed, thankfully in a private room, about 6 hours after surgery, catheterized and hooked to an IV and vital sign monitors. My family had just gone home after a loving visit when the nurse came in and reminded me that my surgeon wanted me to get up and walk some that same day if I could. Hell, why not? I felt pretty good. No pain, and I felt alert. So the nurse helped me deal with the various tubes and wires, got me out of the inflatable socks and into some slippers and holding my hand helped me to slowly stand beside the bed. As I stood, I suddenly felt a bit dizzy, so I sort of leaned back toward the bed. At the exact moment that the nurse asked if I felt OK a wave of nausea washed over me that shook me to the core and suddenly, with absolutely no chance to control it, everything that had been in my "core" was shooting violently out of me. At both ends. I'm told this sometimes happens when one comes out of anesthesia. The expelling must have only lasted a second or two and the dizziness passed just as quickly, but, oh, my! What an ungodly mess. With no exclamation, the nurse gently led me to the bathroom and asked me be seated on the toilet. Once I was seated, she asked if I would be OK to wait there a few moments. When I answered in the affirmative she fetched cleaning supplies, linens (and maybe help, I don't know). In what seemed no time, she had me cleaned and dressed in a clean gown, the room cleaned, my bed made with fresh linens, and me comfortably back in it. Never a word of complaint from her as she dealt with my mess that I found disgusting. With a smile she said, "Perhaps you should wait until morning to try to walk about." With that she left me to rest, and to my knowledge I have never seen her again. What a demonstration of human kindness. Yes, it was her job, but still...Did I mention she was truly a beautiful person? I inquired about her the next day and told that her shift rotation had taken her to another ward.  

Wednesday, June 29, 2016

Empathy is not always EZ.

I participate in a Facebook-based support group for prostate cancer sufferers, patients, survivors, and their supporting family, friends, and lovers. There have been many discussions of the symptoms and impact on the body of the cancer and the effectiveness and side effects of the various treatments. Side effects that often include urinary incontinence and erectile dysfunction (ED) formerly known as impotence. Everyone's journey through this often fatal landscape is wildly unique and different. Today one of the partners of a cancer sufferer posted a note that ED just didn't matter and implied that forum members should just be glad to be still alive and shut up about that issue. A couple of men (both suffering extreme cancer-related life-threatening problems) posted that, in their dire situation, sex simply no longer mattered to them. The original poster (OP in today's language) then congratulated those two for "being comfortable in your own skin and for having good self esteem and for knowing what a REAL MAN is." I found her words to be insensitive and hurtful, and did not immediately have the words to respond. 

A couple of other cancer-suffering men did chime in and post to the effect that she simply did not understand. One man went so far as to call her patronizing. I'm not sure I'd have used that word. Anyway, after some time pondering, below is what I posted in reply to her REAL MAN comment:

Thank you, Robert and Henry. I wanted to respond to Patsy but needed some time to think so that I could, hopefully, respond in a way that does neither diminish those with greater problems and suffering nor hurt Patsy for her lack of understanding and empathy while making it plain that her words were hurtful.

My dear wife and I have remained committed and faithful for over 48 years. We have raised a great family who are doing well and enjoying life. I am thankful for her and our children and grandchildren, for my life, remaining health, and capabilities, and I have great sadness for those, like [name withheld here] and many others, whose situation is really much more dire and difficult. My PC was originally diagnosed as stage 2 with a Gleason of 4+3 with “excursions to 5.” Twelve of fourteen biopsy cores were positive for cancer although my PSA had never been over 4 and all of my DREs had been unremarkable. The biopsy was recommended because my PSA went from 2 to 4 in a three-month period (followed because I did have BPH, and the PSA increase was verified with a follow up and a second lab). The RP surgery proved the cancer had spread outside the prostate capsule so my diagnosis was changed to stage 3. I have, and continue, to receive what, to the best of my ability to judge, is excellent medical care and I have excellent insurance. My oncologist, supported by post-surgery pathology, believes that all the cancer was removed. At six-months post-surgery, my PSA is ND. I do recognize that in many, many ways, I’ve been exceedingly blessed.

I have no idea how to communicate the loss that my wife and I both feel, other than to say that it hurts. Our hurt in no way diminishes anyone else’s pain. But it is real. We have benefited from joint counselling post-surgery. Depression meds (for both of us) have helped.

I am as “comfortable in my own skin” as I know how to be, take responsibility for my health where I can, and continue to work full-time now that I’m past my initial recuperative period. I provide for my family and provide emotional, intellectual, loving support for my family. I ride my motorcycle regularly. My youngest daughter and I rode our bicycles in a 20-mile fund-raising event for the American Diabetes Association. I’m training for my first 5K running event in support of funding for PrCa research. I try to be supportive to others through this forum and our local chapter of Us Too. I meditate daily and do yoga on non-running days. I share the housework and read to my vision-impaired wife. She and I do enjoy intimacy and I’ve tried to be a sensitive and giving lover within my current capabilities. But our loss still hurts. It hurts her and that hurts me. And, deep down, there are the fears voiced by Henry (Explanatory note here -- Henry voiced fears on Facebook that his wife would leave him for a more capable lover) —and I do not mean to slight my wife nor disrespect her in any way when I voice this. I believe that if you have not suffered the loss of something that, for your adult life, has been part of your being and part of what you could offer in a loving relationship you probably don’t really understand. And for that, you must be forgiven.


So, Patsy, what is a real man?  And how can anyone define that for any other person?

I await her reply.

Sunday, January 31, 2016

It's not an EZ road to recovery.

I've joined a support group for prostate cancer victims on Facebook. I also attend a live support group that meets once a month. Here is a description of my experience that I have shared with those groups.

I'm 65 yo, reasonably healthy but about 10% over ideal weight. I had the DaVinci radical prostatectomy on 3 December 15. 12 of 14 biopsy cores had been positive, Gleason of 7 (4+3 with "excursions" to 5) and some evidence of extra-capsule malignancy. Both the radiation oncologist and the surgical oncologist (and second opinion) agreed surgery was the best first choice for me, as it can be followed by radiation if not fully successful but, for some reason, it's less desirable to do surgery if the radiation doesn't fully work. I spent two nights in hospital, had next to no pain, painkillers for only two days post-discharge. I took the month of December off (slept  and went back to work 1st workday of January. Will go back for F/U with first post-surgery PSA early February. The surgeon was able to do "nerve sparing" surgery on one, but not both sides, of the prostate area. They took the seminal vesicles and samples of the lymph nodes as well. Pathology after surgery was good with all "clean edges" but it did show some extra-capsular malignancy which was removed. At this point, I'm finding that I still have excess fatigue and tire VERY easily. The incontinence is my big gripe, very demoralizing, and I've not seen any improvement, yet. I had a catheter for one week. Since it's removal, if I'm standing or walking, I'm leaking. I can hold it no problem sitting or laying down. Coughing, sneezing, laughing no problem unless standing. I'm using "prompted toileting" using the timer on my iPhone to remind me to void every hour while awake. I am receiving rehabilitative care once a week with biofeedback on the Kegels and electrostimulation for the pelvic floor muscle. I find I do better on holding the urine when I'm fresh than when I'm tired. I've been prescribed daily Viagra and issued an expensive pump, but there's no sign of life there yet. My wife is demonstrating the meaning of patience. A deciding factor for me: every Dr. I consulted said side effects are initially worse with surgery but they get better -- with radiation, side effects are minimal up front but a significant number of men so treated have onset of incontinence and impotence later on and the side effects then get worse over time and never get better.


Sunday, December 6, 2015

It's more EZ at home

Well, here I am at home. Prostateless post-surgery and wearing a catheter. while I have been prescribed some pain killer, the pain is not really bad. The catheter is uncomfortable, but it should go away in about 10 days.  I have a long list of do and don't items. Get lots of rest. Walk a lot. Avoid stairs, etc.  I may be back later for a bit more discussion, but now that I've walked a bit, I feel the need for some rest.

Friday, November 27, 2015

The saga of an EZ life

For much of my life, I have felt as though my existence was charmed, and I often wondered why, even feeling, perhaps, a bit of survivor's guilt knowing that I had done nothing especially worthy of the gifts with which I had been blessed. I've not been notably good nor notably bad, either. In fact, I have noted that I'm not very good at being bad, but I am pretty bad at being good.

I lived a comfortable life - so many worked so much harder and not been so blessed.
I achieved a fair rank - so many served with so much more distinction and did not progress as far.
My health problems were always minor - so many took much better care of their health and yet suffered.

And it goes on this way in every aspect of life. I am, at age 65, married to my childhood (literally) sweetheart. We recently celebrated our 47th anniversary. We raised a relatively large family and have been blessed with healthy and honorable children and now grandchildren. We lost none to accident, violence, disease, drugs, or prison.  Unfortunately, I know many parents who cannot say the same thing. We have a supportive community and many good friends.

I was born late in my parents' lives, so never knew my grandparents. My mother's father died when I was about 2 years old -- the others all gone long before that. I have lost my own parents, one sibling (who passed at about age 72), and now my wife has bid final farewells to both of her parents. This would seem to be just the normal course of life, events to be expected in any life.

The fall of 2015, though, seems to be different, with a variety of things coming to a head sort of all at once.

First, I'm having my first real health challenge (at least not of my own making) with a diagnosis of prostate cancer. I have earlier written about this.

My beloved wife has had a series of health challenges, but the most bothersome has been a condition called orthostatic hypotension. When she stands, her blood pressure drops and the body does not react to compensate. She has had several severe falls from blacking out. We've had every known medical test performed and cannot find the cause. Doctors say, "learn to live with it."

We are blessed that we have good health insurance to offset the costs -- many are not so blessed.

One week ago, my eldest brother called and he was very agitated, going on loudly about things that had him upset. Things that just could not be true. Now he is resident in a mental care facility as he's just lost touch with reality, apparently through dementia, and was judged to be a threat to himself and others. Just two weeks ago, this noble and robust warrior celebrated his 81st birthday.

During that same week, I received news that my eldest sister, born in 1932, has been diagnosed with uterine cancer.

Later that same night came the call summoning my wife to return to Idaho for her father's funeral.

The change to Social Security rules signed into effect by law in early November impacts our pending retirement plans as it effectively reduces our income for next year by over $7,000.00 due to the elimination of a program that we had planned on as an integral part of our retirement program. The program called "file and suspend," ends the day before I would have been eligible to enroll.

Having so many stressors all at once, I have to say, has been hard for me to deal with. There have been recent days that I have lost my temper needlessly and I have struck out at inanimate objects. There have been days I've not been able to concentrate, nor relax, nor work. There have been nights without sleep. So much all at once after such a long life of minimal trouble reminds me of a recurring nightmare that I had throughout my teen years: In my dream, after a lifetime of pushing a huge rounded boulder up a steep hill, just as I reached the apex of the summit, where the rock could with one more push, tumble freely over the other side, my sandal-shod foot slipped and I fell face down to be crushed by the boulder rolling back onto me. After my teen years, the dream left me with only very rare occasional replays.

At the time, I did not know of the myth of Sisyphus--the exact story of which I was dreaming. But I know the story now, and as I reach the entry to my "golden years" and retirement, after a lifetime of work, am I to be Sisyphus?

Tuesday, October 20, 2015

Positively EZ or easily positive?

October 20, 2015

My biopsy was collected on the afternoon of September 24, 2015, by Dr. Duffey in the urology clinic at the Brooke Army Medical Center (BAMC) within the San Antonio Military Medical Center (SAMMC). As I dressed afterward, Dr. Duffey said, "Make an appointment to come back in two weeks. I don't share results over the telephone -- good or bad, I do it face to face."

My appointment for receiving the results was made for the afternoon of October 8th. It was a convenient time, as I already had an appointment scheduled at the ophthalmology clinic on the morning of that same day. For at least 10 days prior to my appointment I found that I was unable to accomplish anything and could not concentrate for 10 minutes. I couldn't read, I couldn't write, I couldn't watch TV or a movie. I did not know why until I realized that at some level I was frightened. Upon that realization, I went and talked to a friend, really opening up. That helped.

I checked into the urology clinic after lunch on the 8th and was directed to the waiting area to see Dr. Duffey. As I sat on the slippery vinyl I tried to anticipate my appointment and receiving the feedback that the biopsy was negative. I mean, after all, I'm not sick, I have no pain, must be no problem, right? What, exactly, would I tell my family? Would I write about it in my blog? Would the doctor ask me to repeat the biopsy at some future date? With these thoughts in my head, I drifted into a light sleep.

"MR. MOYES!" Oh. My name. My appointment. Shaking my head to awaken, I stood and received my direction to Dr. Duffey's office, where I was greeted and seated.

Dr. Duffey did not mince words: "Your biopsy was positive."

There was more; a lot more, and I think I actually recall most of it, but I don't need to write about it here. The summary: of fourteen needle biopsy samples two were negative for cancer, four were questionable, and eight were positive. Of the eight positive samples, some had as much as 60% of the cells cancerous. This cancer, prostate cancer, is rated for risk using something called the Gleason Scale rated from 2 - 10. I recall that Dr. Duffey was professional, positive, and kind. He had earlier, before the biopsy, explained carefully that prostate cancer is not a death sentence -- it is generally not aggressive and most men of my advanced years that are diagnosed with prostate cancer die with the disease, not of the disease. And it is common: nearly half of the men who reach their mid-60s will have prostate cancer. With a Gleason score of 7, I am a patient of "Intermediate Risk." Dr. Duffey outlined my options: (1) Watchful waiting; (2) Prostatectomy by surgery; (3) External radiation therapy; (4) Implanted radiation "seeds." I, the patient, must decide which course to follow.

  • Option 1, watchful waiting is not a good choice for a Gleason 7, Dr. Duffey says.
  • Option 2, surgery is Dr. Duffey's choice, but he is a surgeon and admits to prejudice here.
  • Option 3, external radiation is, he says, also a good choice and tells me I'll consult with a radiation oncologist before I make my decision.
  • Option 4 is not done at BAMC.

So that leaves options 2, surgery, or 3, external radiation. Dr. Duffey assures me that I don't need to make the decision right away but again stresses that I will have to make the decision. He explained that I (and my wife) would be enrolled in their comprehensive prostate cancer clinic whereby we would receive broad counseling from every medical and helping specialty known to man. I was introduced to Janet, who runs the comprehensive cancer clinic and she enrolled me (us) and gave me a verbal overview. In addition to the counseling, we will meet with survivors and current patients and have group sessions. Our first appointment for the comprehensive clinic is scheduled for the 28th of this month. Only after meeting with and being briefed by surgeons, radiation oncologists, nutritionists, psychologists, financial counselors, and the kitchen sink will I have to decide on a course of treatment. I left the clinic on the eighth of October with a bagful of reading assignments: books, leaflets, pamphlets, sheets, and a long list of internet links.

So, I have cancer. Cancer that is common and is not normally considered to be aggressive, not normally considered to be fatal. But my particular cancer is on the more aggressive side of the scale for prostate cancer, hence the Gleason score of 7. I have cancer. It does not have me.

I will have to make a treatment choice. Right now I'm leaning toward the surgery, but I won't make a final decision until after I speak to the range of counselors. Modern surgery is much less invasive than in recent past years. They use an orthoscopic technique with robotic assistance. The doctor says convalescence is normally comparatively short and most men are back to full function within about three months. Some men experience a loss of sexual function with the prostatectomy. Some don't. There will be other side effects with surgery and with radiation therapy. We will deal with those as needed. This is so new to me, because, you see, at age 65, I've never had any invasive surgery; never been hospitalized, and rarely ill beyond a head cold, so I've been blessed up until now. I did have a small skin cancer removed from my upper back a couple years ago, but that was outpatient, quick, and painless.

Now I'm reading the book, "What helped me get through" written by and about cancer survivors. I have shared the news with close friends and family. I don't see any reason for this to be a secret, but I don't think the world needs to know, either. But I need to clarify my thoughts, and writing is one way I do that, so I'm writing. I'm working. I'm scheduling and attending events with my family. I'm enjoying things that I want to enjoy.  I've also told my three sons that they are at increased risk of prostate cancer (their uncle, my eldest brother, is a prostate cancer survivor, so the tendency is definitely in the family) and advised them to ensure they talk to their doctors and get their checkups.

Over the next weeks (months?) we will be busy with appointments and procedures. We will deal with it and do what needs to be done. I thank our Father in Heaven for the good years I have had and for the good days I am having now. My last two blog posts are about family and friends time. It seems sweeter now than ever before and I am thankful. Friends and I are working on an idea for founding a nonprofit organization that should do a lot of good. I am thankful for the opportunity to contribute in a small way. I think I'll take the initiative to do my home teaching, visiting the few families in our ward congregation that I've been called to minister to. I am thankful for that opportunity.

And with this, and for now, I wish you all well. Guys: Talk to your doctor. Have your exam!!

Tuesday, July 24, 2012

Negative

On Friday, July 20, 2012, I received results from the pathology exam of the growth removed from my back. The edge analysis was negative. This means that the minor surgery has apparently removed all of the cancer. This is good news and should be a relief. Now I'm just waiting to feel relieved.

Tuesday, July 10, 2012

Whether 'tis EZier in the mind to suffer...

Squamous cell carcinoma. A type of skin cancer. It is known to spread faster than basal cell carcinoma and can spread to other parts of the body to include internal organs.

I've read that a diagnosis of cancer changes your life. Everything. The way you think, what you choose to believe, what you choose to do, how you feel. I received my diagnosis today by telephone. Other than that it was a very normal day -- I met with clients and with employees, visited with family. So far all I feel is very tired, weary.

The fact that I'm 1,500 miles from home and here to attend the funeral of my sister-in-law whom we lost last Monday to cancer may contribute to my feeling of weariness.

At my ripe old age, I have often wondered what it would be that would end my life. I've actually had a low-grade morbid curiosity about that since I was a child. This may be it--the wondering may be over.

But probably not. I'm scheduled for minor surgery to have the cancerous spot on my back removed in less than a week from now. The literature tells me that, caught early, this cancer is generally treatable, and often does not return, but that I am now and for the rest of my life more prone to skin cancer than if I'd never had it. I am to be vigilant. Right now, I'm just tired.