Saturday, April 1, 2023
And it's back...
The melanoma in my right ear lobe is back. I noted a small, irritated lesion in early February. I called the triage nurse at MD Anderson. She conferred with medical staff and told me to see my dermatologist. It took a couple weeks to get an appointment with the dermatologist. By then, there were a number of small lesions on and around my right ear lobe. She said it didn't look like a cancer and prescribed a 10-day course of anti-viral and antibiotic medicines and a steroid cream for the ear. During that time it got continually worse. At first follow up with her, mid-March, she took a biopsy.
Wednesday, March 8, 2023
The saga continues, and it hasn't gotten any EZer.
Since my last post, I have had surgery and a variety of scans (PET with contrast
dye, echo-scan of neck soft tissue, PSMA with contrast) and surgery. The surgery
was to remove the lesion that proved to be melanoma in my R. ear lobe. The PET
scan and echo-scans were prepertory to that. With part of the ear lobe, the
surgeon also took three lymph nodes from my neck on the R side for biopsy. After
surgery and post-surgery pathology, they reported 'clear margins' on the ear
lobe and negative for melanoma in the lymph nodes. That was done by Dr.
Shellenberger at MD Anderson/Banner in late November of 2022. It is now March 8,
2023, and lesions (multiple) have appeared on my R ear lobe. They itch, and like
the earlier granuloma, have a tendency to form blood blisters, pop untouched,
and bleed profusely. I spoke to the triage nurse and MD Anderson and sent her
iPhone photos of the ear lobe. She consulted with Dr. Shellenberger. He said I
should see my dermatologist. So I did. I saw Ms. Mack on March 6, 2023. She
consulted with another provider, then told me that it did not appear to be
cancerous but they were unsure of what it might be. She prescribed Halcinonide
cream (topical) and both an antiviral (Valacyclovir) and an antibiotic
(Doxycycline), all three to be used for a 10-day course and then reexamine.
The earlier-mentioned PSMA scan was a result of my PSA test showing a positive
result on the routine annual re-check on December 13, 2022. The results were
low, only 0.03, but it has been non-detect for seven years, and should have
stayed that way. I was referred to a different clinic at MD Anderson where I say
provider Michael Snyder. He repeated the PSA with the same results then ordered
the PSMA scan. The results of the scan were inconclusive -- no sign or active
prostate cancer was found, but two spots that might be of concern for other
malignancies were noted, and I've been scheduled to repeat the PSMA in April. I
have to be sedated for the PET scan and/or the PSMA. They aren't as bad as an
MRI for my claustrophobia, but more than I can do without some sedation.
Meanwhile, On February, 24, I fell on the sidewalk and broke a rib rib. Was seen
at Dignity Health ER, Ellsworth/Elliot. CT and blood work. Clean break, rib #7
(4th rib, R side), 6mm displacement. Prescribed pain killers
(hydrocodone/Tylenol and Ibuprofen) x 5 days. Dr. says will heal, but will hurt.
1-3 months normal for healing. Also on CT, report of gallstones, 'tiny' hiatal
hernia, and atrophied pancreas. I discussed those findings with Dr. Klein, my
PCP, and he was not concerned. At 11 days after the break, the rib still is
excruciatingly painful under the 'wrong' circumstances, such as a sneeze.
My friend in Texas, who has the melanoma first found due to the pylogenic
granuloma is having a very hard time. Her melanoma spread from a single spot on
her leg to an outbreak of cancerous lesions 10 inches in diameter in a matter of
weeks. She is being treated by radiation and chemotherapy, and is unable to walk
or stand at this time, so can't work. And she's a single mother. Her melanoma
was first diagnosed on October 28, 2022, the same day I was first diagnosed with
the melanoma on my ear lobe.
Monday, November 14, 2022
See, it really CAN be EZ!
Glenda had a 9:00 a.m. appointment this morning (we are having permanent hair removal on her chin done, at her request). I had taken to her the morning meds and supplements at 7 a.m. after which she laid back down. I had her morning smoothie prepared and in the fridge, so I took Dak out for his morning walk, then to the club to read the paper, have a warm beverage, and tell lies with the other old men there. I returned home at about 8:15 expecting to wake her up to get ready for her appointment. I found her up and dressed. She's had her breakfast, made the bed, unloaded the dishwasher and was listening to her scriptures (which she actually got started herself!!). How wonderful! I told her she was working very hard on that wifely stuff this morning, and I appreciated it. Her appointment (first of 6) went well, after which we ordered our Thanksgiving Day Turkey Dinner, then swung through the Starbucks drive-thru for a hot chocolate and then home. Yeah, yeah. I know. All very routine and normal. That's what makes it so special to me!
Wednesday, November 9, 2022
More of EZ’s Saga
At my first appointment at MD Anderson Cancer Center in Mesa. My extraordinary run of luck seems to be continuing as I've been directed to exam room #13 to await the doctor.
This morning at MD Anderson went much as I expected. It took about an hour to get 'registered' as a new patient, complete a lengthy medical history, and for them to verify my Medicare and Tricare for payment for services. Proving that my lucky streak (except for the lottery) continues, I was escorted to exam room #13. Was seen by the doctor in just a few minutes. He reviewed my medical history with me in detail, examined the spot on my ear, and went over the information forwarded from my dermatologist who removed the original growth. He then went over the plan of confirmatory diagnosis with me. They will obtain the biopsy slides from the lab that did the original to examine in their own pathology lab. On 11/17 I will have an EKG, lab work collected, ultrasound of my neck and head soft tissue, and then see the doc on 11/21 for a pre-op visit. Assuming all goes well to that point, I then go off Eliquis and NSAIDs for a week and on 11/29 be at MD Anderson before 7:00 a.m. (nothing by mouth after midnight) to have neck/head lymphatic gland mapping (a three-hour non-invasive process), followed at 11:30 with surgery to remove additional tissue from the ear lobe and the sentinel lymph gland (one or more glands) for biopsy. This is supposed to be out-patient surgery, local anesthesia only, so I should be home by 3 or so in the afternoon.
If the removed ear tissue shows clear margins and the lymph glands are negative for melanoma, I will only need routine follow-up afterward. If not, we'll go to the next stage to discuss immunotherapy, chemotherapy, radiotherapy, or some combination of the three.
I will need someone to stay with Glenda on the 29th, as I have to be there early and stay most of the day (at least) and I'm not comfortable leaving her alone that long. Writing this up in detail has been good for me just to make sure I know and understand all this activity.